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Quality of Life After Orthognathic Surgery in Patients with Cleft : An Overview of Available Patient-Reported Outcome Measures. / Ploumen, Roan L. M.; Willemse, Samuel H.; Jonkman, Ronald E. G.; Nolte, Jitske W.; Becking, Alfred G.

In: Cleft palate-craniofacial journal, 17.12.2021.

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@article{c20bdb2d07294ae8a54ec5aff315c7c4,
title = "Quality of Life After Orthognathic Surgery in Patients with Cleft: An Overview of Available Patient-Reported Outcome Measures",
abstract = "Objective : Measuring the impact of orthognathic surgery on quality of life is of significant importance in patients with cleft deformities. Standardized tools such as patient-reported outcome measures (PROMs) are needed to fully comprehend patients{\textquoteright} needs and perceptions. Therefore, the availability of reliable, valid, and comprehensive questionnaires for patients is essential. The aim of this study is to identify PROMs measuring the impact of orthognathic surgery on quality of life in patients with cleft deformities and to evaluate the identified PROMs. Methods : A systematic search of the literature was performed according to the preferred reporting items for systematic reviews and meta-analysis guidelines. All validated PROMs, regarding the impact of orthognathic surgery on quality of life in patients with cleft deformities, were identified and assessed according to the quality criteria proposed for measurement properties of health status questionnaires. Results : An electronic search yielded 577 articles. After a full-text review of 87 articles, 4 articles met the inclusion criteria, comprising 58 PROMs. Of these 58 PROMs, 1 PROM (the CLEFT-Q) has been validated to measure the impact of orthognathic surgery on patients with a facial cleft. Evaluation of methodological quality of the included articles and assessment of the measurement properties of the CLEFT-Q show that the CLEFT-Q scores relatively good for all available measurement properties, making it suitable for immediate use. Conclusion: The CLEFT-Q was found to be the only valid instrument so far to measure the impact of orthognathic surgery on the quality of life in patients with cleft deformities.",
keywords = "craniofacial morphology, orthognathic surgery, quality of life",
author = "Ploumen, {Roan L. M.} and Willemse, {Samuel H.} and Jonkman, {Ronald E. G.} and Nolte, {Jitske W.} and Becking, {Alfred G.}",
note = "Publisher Copyright: {\textcopyright} 2021, American Cleft Palate-Craniofacial Association.",
year = "2021",
month = dec,
day = "17",
doi = "10.1177/10556656211067120",
language = "English",
journal = "Cleft palate-craniofacial journal",
issn = "1055-6656",
publisher = "American Cleft Palate Craniofacial Association",

}

RIS

TY - JOUR

T1 - Quality of Life After Orthognathic Surgery in Patients with Cleft

T2 - An Overview of Available Patient-Reported Outcome Measures

AU - Ploumen, Roan L. M.

AU - Willemse, Samuel H.

AU - Jonkman, Ronald E. G.

AU - Nolte, Jitske W.

AU - Becking, Alfred G.

N1 - Publisher Copyright: © 2021, American Cleft Palate-Craniofacial Association.

PY - 2021/12/17

Y1 - 2021/12/17

N2 - Objective : Measuring the impact of orthognathic surgery on quality of life is of significant importance in patients with cleft deformities. Standardized tools such as patient-reported outcome measures (PROMs) are needed to fully comprehend patients’ needs and perceptions. Therefore, the availability of reliable, valid, and comprehensive questionnaires for patients is essential. The aim of this study is to identify PROMs measuring the impact of orthognathic surgery on quality of life in patients with cleft deformities and to evaluate the identified PROMs. Methods : A systematic search of the literature was performed according to the preferred reporting items for systematic reviews and meta-analysis guidelines. All validated PROMs, regarding the impact of orthognathic surgery on quality of life in patients with cleft deformities, were identified and assessed according to the quality criteria proposed for measurement properties of health status questionnaires. Results : An electronic search yielded 577 articles. After a full-text review of 87 articles, 4 articles met the inclusion criteria, comprising 58 PROMs. Of these 58 PROMs, 1 PROM (the CLEFT-Q) has been validated to measure the impact of orthognathic surgery on patients with a facial cleft. Evaluation of methodological quality of the included articles and assessment of the measurement properties of the CLEFT-Q show that the CLEFT-Q scores relatively good for all available measurement properties, making it suitable for immediate use. Conclusion: The CLEFT-Q was found to be the only valid instrument so far to measure the impact of orthognathic surgery on the quality of life in patients with cleft deformities.

AB - Objective : Measuring the impact of orthognathic surgery on quality of life is of significant importance in patients with cleft deformities. Standardized tools such as patient-reported outcome measures (PROMs) are needed to fully comprehend patients’ needs and perceptions. Therefore, the availability of reliable, valid, and comprehensive questionnaires for patients is essential. The aim of this study is to identify PROMs measuring the impact of orthognathic surgery on quality of life in patients with cleft deformities and to evaluate the identified PROMs. Methods : A systematic search of the literature was performed according to the preferred reporting items for systematic reviews and meta-analysis guidelines. All validated PROMs, regarding the impact of orthognathic surgery on quality of life in patients with cleft deformities, were identified and assessed according to the quality criteria proposed for measurement properties of health status questionnaires. Results : An electronic search yielded 577 articles. After a full-text review of 87 articles, 4 articles met the inclusion criteria, comprising 58 PROMs. Of these 58 PROMs, 1 PROM (the CLEFT-Q) has been validated to measure the impact of orthognathic surgery on patients with a facial cleft. Evaluation of methodological quality of the included articles and assessment of the measurement properties of the CLEFT-Q show that the CLEFT-Q scores relatively good for all available measurement properties, making it suitable for immediate use. Conclusion: The CLEFT-Q was found to be the only valid instrument so far to measure the impact of orthognathic surgery on the quality of life in patients with cleft deformities.

KW - craniofacial morphology

KW - orthognathic surgery

KW - quality of life

UR - http://www.scopus.com/inward/record.url?scp=85121702490&partnerID=8YFLogxK

U2 - 10.1177/10556656211067120

DO - 10.1177/10556656211067120

M3 - Article

C2 - 34919469

JO - Cleft palate-craniofacial journal

JF - Cleft palate-craniofacial journal

SN - 1055-6656

ER -

ID: 20903179