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Engaging citizens in the development of a health system performance assessment framework : a case study in Ireland. / Brito Fernandes, Óscar; Barbazza, Erica; Ivanković, Damir et al.

In: Health Research Policy and Systems, Vol. 19, No. 1, 148, 12.2021.

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Brito Fernandes Ó, Barbazza E, Ivanković D, Jansen T, Klazinga NS, Kringos DS. Engaging citizens in the development of a health system performance assessment framework: a case study in Ireland. Health Research Policy and Systems. 2021 Dec;19(1):148. doi: 10.1186/s12961-021-00798-8

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Brito Fernandes, Óscar ; Barbazza, Erica ; Ivanković, Damir et al. / Engaging citizens in the development of a health system performance assessment framework : a case study in Ireland. In: Health Research Policy and Systems. 2021 ; Vol. 19, No. 1.

BibTeX

@article{73aec3b931474b849ae021b4dd678564,
title = "Engaging citizens in the development of a health system performance assessment framework: a case study in Ireland",
abstract = "Background: The launch in 2017 of the Irish 10-year reform programme Sl{\'a}intecare represents a key commitment in the future of the health system. An important component of the programme was the development of a health system performance assessment (HSPA) framework. In 2019, the Department of Health of Ireland (DoH) and Health Service Executive (HSE) commissioned the technical support of researchers to develop an outcome-oriented HSPA framework which should reflect the shared priorities of multiple stakeholders, including citizens. This study describes the method applied in the Irish context and reflects on the added value of using a citizen panel in the development of an HSPA framework. Methods: A panel of 15 citizens was convened, recruited by a third-party company using a sampling strategy to achieve a balanced mix representing the Irish society. Panellists received lay-language preparatory materials before the meeting. Panellists used a three-colour scheme to signal the importance of performance measures. An exit questionnaire was administered to understand how participants experienced being part of the panel. The citizen panel was the first in a series of three panels towards the development of the HSPA framework, followed by panels including representatives of the DoH and HSE, and representatives from professional associations and special interest groups. Results: The citizen panel generated 249 health performance measures ranging across 13 domains. Top-ranking domains to the citizen panel (people-centredness, coordination of care, and coverage) were less prioritized by the other panels; domains less prioritized by the citizen panel, such as accessibility, responsiveness, efficiency, and effectiveness, were of higher priority in the other panels. Citizen panellists shared a similar understanding of what a citizen panel involves and described their experience at the panel as enjoyable, interesting, and informative. Conclusions: The priorities of the citizen panel were accounted for during all phases of developing the HSPA framework. This was possible by adopting an inclusive development process and by engaging citizens early on. Citizen engagement in HSPA development is essential for realizing citizen-driven healthcare system performance and generating trust and ownership in performance intelligence. Future research could expand the use of citizen panels to assess, monitor, and report on the performance of healthcare systems.",
keywords = "Focus group, Healthcare system performance, Ireland, Performance intelligence, Priority-setting, Public deliberation, Sl{\'a}intecare, Stakeholder panel",
author = "{Brito Fernandes}, {\'O}scar and Erica Barbazza and Damir Ivankovi{\'c} and Tessa Jansen and Klazinga, {Niek S.} and Kringos, {Dionne S.}",
note = "Funding Information: The participation of DI, EB, and {\'O}BF occurred within a Marie Sk{\l}odowska-Curie Innovative Training Network (HealthPros-Healthcare Performance Intelligence Professionals) that has received funding from the European Union{\textquoteright}s Horizon 2020 research and innovation programme under grant agreement no. 765141 ( https://healthpros-h2020.eu ). The participation of DK, NK, and TJ occurred within the European Commission Structural Reform Support Service project SRSS/C2019/046, “Performance accountability for the Irish health system”. The funders had no role in study design, data collection and analysis, decision to publish, or preparation of the manuscript. Publisher Copyright: {\textcopyright} 2021, The Author(s).",
year = "2021",
month = dec,
doi = "10.1186/s12961-021-00798-8",
language = "English",
volume = "19",
journal = "Health research policy and systems / BioMed Central",
issn = "1478-4505",
publisher = "BioMed Central",
number = "1",

}

RIS

TY - JOUR

T1 - Engaging citizens in the development of a health system performance assessment framework

T2 - a case study in Ireland

AU - Brito Fernandes, Óscar

AU - Barbazza, Erica

AU - Ivanković, Damir

AU - Jansen, Tessa

AU - Klazinga, Niek S.

AU - Kringos, Dionne S.

N1 - Funding Information: The participation of DI, EB, and ÓBF occurred within a Marie Skłodowska-Curie Innovative Training Network (HealthPros-Healthcare Performance Intelligence Professionals) that has received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement no. 765141 ( https://healthpros-h2020.eu ). The participation of DK, NK, and TJ occurred within the European Commission Structural Reform Support Service project SRSS/C2019/046, “Performance accountability for the Irish health system”. The funders had no role in study design, data collection and analysis, decision to publish, or preparation of the manuscript. Publisher Copyright: © 2021, The Author(s).

PY - 2021/12

Y1 - 2021/12

N2 - Background: The launch in 2017 of the Irish 10-year reform programme Sláintecare represents a key commitment in the future of the health system. An important component of the programme was the development of a health system performance assessment (HSPA) framework. In 2019, the Department of Health of Ireland (DoH) and Health Service Executive (HSE) commissioned the technical support of researchers to develop an outcome-oriented HSPA framework which should reflect the shared priorities of multiple stakeholders, including citizens. This study describes the method applied in the Irish context and reflects on the added value of using a citizen panel in the development of an HSPA framework. Methods: A panel of 15 citizens was convened, recruited by a third-party company using a sampling strategy to achieve a balanced mix representing the Irish society. Panellists received lay-language preparatory materials before the meeting. Panellists used a three-colour scheme to signal the importance of performance measures. An exit questionnaire was administered to understand how participants experienced being part of the panel. The citizen panel was the first in a series of three panels towards the development of the HSPA framework, followed by panels including representatives of the DoH and HSE, and representatives from professional associations and special interest groups. Results: The citizen panel generated 249 health performance measures ranging across 13 domains. Top-ranking domains to the citizen panel (people-centredness, coordination of care, and coverage) were less prioritized by the other panels; domains less prioritized by the citizen panel, such as accessibility, responsiveness, efficiency, and effectiveness, were of higher priority in the other panels. Citizen panellists shared a similar understanding of what a citizen panel involves and described their experience at the panel as enjoyable, interesting, and informative. Conclusions: The priorities of the citizen panel were accounted for during all phases of developing the HSPA framework. This was possible by adopting an inclusive development process and by engaging citizens early on. Citizen engagement in HSPA development is essential for realizing citizen-driven healthcare system performance and generating trust and ownership in performance intelligence. Future research could expand the use of citizen panels to assess, monitor, and report on the performance of healthcare systems.

AB - Background: The launch in 2017 of the Irish 10-year reform programme Sláintecare represents a key commitment in the future of the health system. An important component of the programme was the development of a health system performance assessment (HSPA) framework. In 2019, the Department of Health of Ireland (DoH) and Health Service Executive (HSE) commissioned the technical support of researchers to develop an outcome-oriented HSPA framework which should reflect the shared priorities of multiple stakeholders, including citizens. This study describes the method applied in the Irish context and reflects on the added value of using a citizen panel in the development of an HSPA framework. Methods: A panel of 15 citizens was convened, recruited by a third-party company using a sampling strategy to achieve a balanced mix representing the Irish society. Panellists received lay-language preparatory materials before the meeting. Panellists used a three-colour scheme to signal the importance of performance measures. An exit questionnaire was administered to understand how participants experienced being part of the panel. The citizen panel was the first in a series of three panels towards the development of the HSPA framework, followed by panels including representatives of the DoH and HSE, and representatives from professional associations and special interest groups. Results: The citizen panel generated 249 health performance measures ranging across 13 domains. Top-ranking domains to the citizen panel (people-centredness, coordination of care, and coverage) were less prioritized by the other panels; domains less prioritized by the citizen panel, such as accessibility, responsiveness, efficiency, and effectiveness, were of higher priority in the other panels. Citizen panellists shared a similar understanding of what a citizen panel involves and described their experience at the panel as enjoyable, interesting, and informative. Conclusions: The priorities of the citizen panel were accounted for during all phases of developing the HSPA framework. This was possible by adopting an inclusive development process and by engaging citizens early on. Citizen engagement in HSPA development is essential for realizing citizen-driven healthcare system performance and generating trust and ownership in performance intelligence. Future research could expand the use of citizen panels to assess, monitor, and report on the performance of healthcare systems.

KW - Focus group

KW - Healthcare system performance

KW - Ireland

KW - Performance intelligence

KW - Priority-setting

KW - Public deliberation

KW - Sláintecare

KW - Stakeholder panel

UR - http://www.scopus.com/inward/record.url?scp=85121450162&partnerID=8YFLogxK

U2 - 10.1186/s12961-021-00798-8

DO - 10.1186/s12961-021-00798-8

M3 - Article

C2 - 34930309

AN - SCOPUS:85121450162

VL - 19

JO - Health research policy and systems / BioMed Central

JF - Health research policy and systems / BioMed Central

SN - 1478-4505

IS - 1

M1 - 148

ER -

ID: 20980105