Research output: Contribution to journal › Article › Academic › peer-review
Development of a Preliminary Question Prompt List as a Communication Tool for Adults with Achalasia : A Modified Delphi Study. / Zhuo, Justin; Triadafilopoulos, George; Bredenoord, Albert J. et al.
In: Journal of clinical gastroenterology, Vol. 57, No. 2, 18.02.2023, p. 159-164.Research output: Contribution to journal › Article › Academic › peer-review
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TY - JOUR
T1 - Development of a Preliminary Question Prompt List as a Communication Tool for Adults with Achalasia
T2 - A Modified Delphi Study
AU - Zhuo, Justin
AU - Triadafilopoulos, George
AU - Bredenoord, Albert J.
AU - Clarke, John O.
AU - Fass, Ronnie
AU - Gyawali, Chandra P.
AU - Hawn, Mary
AU - Hwang, Joo Ha
AU - Kahrilas, Peter J.
AU - Katzka, David A.
AU - Low, Donald
AU - Massey, Benson T.
AU - Patel, Dhyanesh
AU - Penagini, Roberto
AU - Roman, Sabine
AU - Savarino, Edoardo
AU - Smout, André J.
AU - Swanstrom, Lee
AU - Tatum, Roger
AU - Vela, Marcelo F.
AU - Zaninotto, Giovanni
AU - Kamal, Afrin N.
N1 - Funding Information: A.J.B.: received research funding from Nutricia, Norgine, Thelial, SST, and Bayer and received speaker and/or consulting fees from Laborie, Arena, EsoCap, Medtronic, Dr. Falk Pharma, Calypso Biotech, Gossamer, Alimentiv, Sanofi, Reckett Benkiser, Regeneron, and AstraZeneca. P.J.K.: served on advisory boards and consulted for Ironwood and Reckitt Benckiser and holds a patent for functional lumen imaging probe (FLIP) technology. The remaining authors declare that they have nothing to disclose. Publisher Copyright: © 2023 Lippincott Williams and Wilkins. All rights reserved.
PY - 2023/2/18
Y1 - 2023/2/18
N2 - Background: Question prompt lists (QPLs) are structured sets of disease-specific questions that enhance patient-physician communication by encouraging patients to ask questions during consultations. Aim: The aim of this study was to develop a preliminary achalasia-specific QPL created by esophageal experts. Methods: The QPL content was derived through a modified Delphi method consisting of 2 rounds. In round 1, experts provided 5 answers to the prompts "What general questions should patients ask when given a new diagnosis of achalasia" and "What questions do I not hear patients asking, but given my expertise, I believe they should be asking?" In round 2, experts rated questions on a 5-point Likert scale. Questions considered "essential" or "important" were accepted into the QPL. Feedback regarding the QPL was obtained in a pilot study wherein patients received the QPL before their consultation and completed surveys afterwards. Results: Nineteen esophageal experts participated in both rounds. Of 148 questions from round 1, 124 (83.8%) were accepted into the QPL. These were further reduced to 56 questions to minimize redundancy. Questions were categorized into 6 themes: "What is achalasia," "Risks with achalasia," "Symptom management in achalasia," "Treatment of achalasia," "Risk of reflux after treatment," and "Follow-up after treatment." Nineteen patients participated in the pilot, most of whom agreed that the QPL was helpful (84.2%) and recommended its wider use (84.2%). Conclusions: This is the first QPL developed specifically for adults with achalasia. Although well-received in a small pilot, follow-up studies will incorporate additional patient feedback to further refine the QPL content and assess its usability, acceptability, and feasibility.
AB - Background: Question prompt lists (QPLs) are structured sets of disease-specific questions that enhance patient-physician communication by encouraging patients to ask questions during consultations. Aim: The aim of this study was to develop a preliminary achalasia-specific QPL created by esophageal experts. Methods: The QPL content was derived through a modified Delphi method consisting of 2 rounds. In round 1, experts provided 5 answers to the prompts "What general questions should patients ask when given a new diagnosis of achalasia" and "What questions do I not hear patients asking, but given my expertise, I believe they should be asking?" In round 2, experts rated questions on a 5-point Likert scale. Questions considered "essential" or "important" were accepted into the QPL. Feedback regarding the QPL was obtained in a pilot study wherein patients received the QPL before their consultation and completed surveys afterwards. Results: Nineteen esophageal experts participated in both rounds. Of 148 questions from round 1, 124 (83.8%) were accepted into the QPL. These were further reduced to 56 questions to minimize redundancy. Questions were categorized into 6 themes: "What is achalasia," "Risks with achalasia," "Symptom management in achalasia," "Treatment of achalasia," "Risk of reflux after treatment," and "Follow-up after treatment." Nineteen patients participated in the pilot, most of whom agreed that the QPL was helpful (84.2%) and recommended its wider use (84.2%). Conclusions: This is the first QPL developed specifically for adults with achalasia. Although well-received in a small pilot, follow-up studies will incorporate additional patient feedback to further refine the QPL content and assess its usability, acceptability, and feasibility.
KW - achalasia
KW - attitudes
KW - booklets
KW - health knowledge
KW - patient satisfaction
KW - physician-patient relations
KW - practice
UR - http://www.scopus.com/inward/record.url?scp=85145641550&partnerID=8YFLogxK
U2 - 10.1097/MCG.0000000000001671
DO - 10.1097/MCG.0000000000001671
M3 - Article
C2 - 35180150
VL - 57
SP - 159
EP - 164
JO - Journal of clinical gastroenterology
JF - Journal of clinical gastroenterology
SN - 0192-0790
IS - 2
ER -
ID: 30839858