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An international study of the quality of life of adult patients treated with home parenteral nutrition. / Home Artificial Nutrition and Chronic Intestinal Failure Special Interest Group of the European Society for Clinical Nutrition and Metabolism (ESPEN); Baxter, Janet P.; Fayers, Peter M.; Bozzetti, Federico; Kelly, Darlene; Joly, Francisca; Wanten, Geert; Jonkers, Cora; Cuerda, Cristina; van Gossum, Andre; Klek, Stanislaw; Boudreault, Marie-France; Gilbert, Alain; Jobin, Manon; Staun, Michael; Gillanders, Lyn; Forbes, Alastair; O'Callaghan, Margie; Faedo, Ceferino Martínez; Brunelli, Cinzia; Mariani, Luigi; Pironi, Loris.

In: Clinical nutrition (Edinburgh, Scotland), Vol. 38, No. 4, 08.2019, p. 1788-1796.

Research output: Contribution to journalArticleAcademicpeer-review

Harvard

Home Artificial Nutrition and Chronic Intestinal Failure Special Interest Group of the European Society for Clinical Nutrition and Metabolism (ESPEN), Baxter, JP, Fayers, PM, Bozzetti, F, Kelly, D, Joly, F, Wanten, G, Jonkers, C, Cuerda, C, van Gossum, A, Klek, S, Boudreault, M-F, Gilbert, A, Jobin, M, Staun, M, Gillanders, L, Forbes, A, O'Callaghan, M, Faedo, CM, Brunelli, C, Mariani, L & Pironi, L 2019, 'An international study of the quality of life of adult patients treated with home parenteral nutrition' Clinical nutrition (Edinburgh, Scotland), vol. 38, no. 4, pp. 1788-1796. https://doi.org/10.1016/j.clnu.2018.07.024

APA

Home Artificial Nutrition and Chronic Intestinal Failure Special Interest Group of the European Society for Clinical Nutrition and Metabolism (ESPEN), Baxter, J. P., Fayers, P. M., Bozzetti, F., Kelly, D., Joly, F., ... Pironi, L. (2019). An international study of the quality of life of adult patients treated with home parenteral nutrition. Clinical nutrition (Edinburgh, Scotland), 38(4), 1788-1796. https://doi.org/10.1016/j.clnu.2018.07.024

Vancouver

Home Artificial Nutrition and Chronic Intestinal Failure Special Interest Group of the European Society for Clinical Nutrition and Metabolism (ESPEN), Baxter JP, Fayers PM, Bozzetti F, Kelly D, Joly F et al. An international study of the quality of life of adult patients treated with home parenteral nutrition. Clinical nutrition (Edinburgh, Scotland). 2019 Aug;38(4):1788-1796. https://doi.org/10.1016/j.clnu.2018.07.024

Author

Home Artificial Nutrition and Chronic Intestinal Failure Special Interest Group of the European Society for Clinical Nutrition and Metabolism (ESPEN) ; Baxter, Janet P. ; Fayers, Peter M. ; Bozzetti, Federico ; Kelly, Darlene ; Joly, Francisca ; Wanten, Geert ; Jonkers, Cora ; Cuerda, Cristina ; van Gossum, Andre ; Klek, Stanislaw ; Boudreault, Marie-France ; Gilbert, Alain ; Jobin, Manon ; Staun, Michael ; Gillanders, Lyn ; Forbes, Alastair ; O'Callaghan, Margie ; Faedo, Ceferino Martínez ; Brunelli, Cinzia ; Mariani, Luigi ; Pironi, Loris. / An international study of the quality of life of adult patients treated with home parenteral nutrition. In: Clinical nutrition (Edinburgh, Scotland). 2019 ; Vol. 38, No. 4. pp. 1788-1796.

BibTeX

@article{f4d22c58052c4f368e7be7273529bffe,
title = "An international study of the quality of life of adult patients treated with home parenteral nutrition",
abstract = "Background & aims: Home parenteral nutrition-quality of life (HPN-QOL{\circledC}) is a self-assessment tool for the measurement of QOL in patients on HPN. The aims of this study were: to re-assess the basic psychometric properties of the HPN-QOL{\circledC} in a multinational sample of adult patients; to provide a description of QOL dimensions by short and long HPN treatment duration; to explore clinical factors potentially associated to QOL scores. Methods: Patients (n = 699) from 14 countries completed the HPN-QOL{\circledC}. The questionnaires were analysed to evaluate data completeness, convergent/discriminant validity and internal-consistency reliability. The association of overall QOL and HPN treatment duration as well as other clinical factors were investigated using multivariable linear regression models. Results: The analysis of the multitrait-scaling and internal consistency indicates a good fit with the questionnaire structure for most items. Item discriminant validity correlation was satisfactory and psychometric evaluation of the HPN-QOL{\circledC} in the different English, French and Italian language patient sub-groups confirmed psychometric equivalence of the three questionnaire versions. The results of the multivariable linear regression showed that QOL scores were significantly associated with HPN duration (better in long-term), underlying disease (better in Crohn's disease and mesenteric ischaemia) and living status (worse in living alone) and, after adjusting for the other factors, with the number of days of HPN infusion per week. Conclusions: The HPN-QOL{\circledC}, is a valid tool for measurement of QOL in patients on HPN, to be used in the clinical practice as well as in research.",
author = "{Home Artificial Nutrition and Chronic Intestinal Failure Special Interest Group of the European Society for Clinical Nutrition and Metabolism (ESPEN)} and Baxter, {Janet P.} and Fayers, {Peter M.} and Federico Bozzetti and Darlene Kelly and Francisca Joly and Geert Wanten and Cora Jonkers and Cristina Cuerda and {van Gossum}, Andre and Stanislaw Klek and Marie-France Boudreault and Alain Gilbert and Manon Jobin and Michael Staun and Lyn Gillanders and Alastair Forbes and Margie O'Callaghan and Faedo, {Ceferino Mart{\'i}nez} and Cinzia Brunelli and Luigi Mariani and Loris Pironi",
note = "Copyright {\circledC} 2018 Elsevier Ltd and European Society for Clinical Nutrition and Metabolism. All rights reserved.",
year = "2019",
month = "8",
doi = "10.1016/j.clnu.2018.07.024",
language = "English",
volume = "38",
pages = "1788--1796",
journal = "Clinical nutrition (Edinburgh, Scotland)",
issn = "0261-5614",
publisher = "Churchill Livingstone",
number = "4",

}

RIS

TY - JOUR

T1 - An international study of the quality of life of adult patients treated with home parenteral nutrition

AU - Home Artificial Nutrition and Chronic Intestinal Failure Special Interest Group of the European Society for Clinical Nutrition and Metabolism (ESPEN)

AU - Baxter, Janet P.

AU - Fayers, Peter M.

AU - Bozzetti, Federico

AU - Kelly, Darlene

AU - Joly, Francisca

AU - Wanten, Geert

AU - Jonkers, Cora

AU - Cuerda, Cristina

AU - van Gossum, Andre

AU - Klek, Stanislaw

AU - Boudreault, Marie-France

AU - Gilbert, Alain

AU - Jobin, Manon

AU - Staun, Michael

AU - Gillanders, Lyn

AU - Forbes, Alastair

AU - O'Callaghan, Margie

AU - Faedo, Ceferino Martínez

AU - Brunelli, Cinzia

AU - Mariani, Luigi

AU - Pironi, Loris

N1 - Copyright © 2018 Elsevier Ltd and European Society for Clinical Nutrition and Metabolism. All rights reserved.

PY - 2019/8

Y1 - 2019/8

N2 - Background & aims: Home parenteral nutrition-quality of life (HPN-QOL©) is a self-assessment tool for the measurement of QOL in patients on HPN. The aims of this study were: to re-assess the basic psychometric properties of the HPN-QOL© in a multinational sample of adult patients; to provide a description of QOL dimensions by short and long HPN treatment duration; to explore clinical factors potentially associated to QOL scores. Methods: Patients (n = 699) from 14 countries completed the HPN-QOL©. The questionnaires were analysed to evaluate data completeness, convergent/discriminant validity and internal-consistency reliability. The association of overall QOL and HPN treatment duration as well as other clinical factors were investigated using multivariable linear regression models. Results: The analysis of the multitrait-scaling and internal consistency indicates a good fit with the questionnaire structure for most items. Item discriminant validity correlation was satisfactory and psychometric evaluation of the HPN-QOL© in the different English, French and Italian language patient sub-groups confirmed psychometric equivalence of the three questionnaire versions. The results of the multivariable linear regression showed that QOL scores were significantly associated with HPN duration (better in long-term), underlying disease (better in Crohn's disease and mesenteric ischaemia) and living status (worse in living alone) and, after adjusting for the other factors, with the number of days of HPN infusion per week. Conclusions: The HPN-QOL©, is a valid tool for measurement of QOL in patients on HPN, to be used in the clinical practice as well as in research.

AB - Background & aims: Home parenteral nutrition-quality of life (HPN-QOL©) is a self-assessment tool for the measurement of QOL in patients on HPN. The aims of this study were: to re-assess the basic psychometric properties of the HPN-QOL© in a multinational sample of adult patients; to provide a description of QOL dimensions by short and long HPN treatment duration; to explore clinical factors potentially associated to QOL scores. Methods: Patients (n = 699) from 14 countries completed the HPN-QOL©. The questionnaires were analysed to evaluate data completeness, convergent/discriminant validity and internal-consistency reliability. The association of overall QOL and HPN treatment duration as well as other clinical factors were investigated using multivariable linear regression models. Results: The analysis of the multitrait-scaling and internal consistency indicates a good fit with the questionnaire structure for most items. Item discriminant validity correlation was satisfactory and psychometric evaluation of the HPN-QOL© in the different English, French and Italian language patient sub-groups confirmed psychometric equivalence of the three questionnaire versions. The results of the multivariable linear regression showed that QOL scores were significantly associated with HPN duration (better in long-term), underlying disease (better in Crohn's disease and mesenteric ischaemia) and living status (worse in living alone) and, after adjusting for the other factors, with the number of days of HPN infusion per week. Conclusions: The HPN-QOL©, is a valid tool for measurement of QOL in patients on HPN, to be used in the clinical practice as well as in research.

UR - https://www.scopus.com/inward/record.uri?partnerID=HzOxMe3b&scp=85051406224&origin=inward

UR - https://www.ncbi.nlm.nih.gov/pubmed/30115461

U2 - 10.1016/j.clnu.2018.07.024

DO - 10.1016/j.clnu.2018.07.024

M3 - Article

VL - 38

SP - 1788

EP - 1796

JO - Clinical nutrition (Edinburgh, Scotland)

JF - Clinical nutrition (Edinburgh, Scotland)

SN - 0261-5614

IS - 4

ER -

ID: 5558759