Research interests

Informing relatives about their hereditary cancer risk. A trial to asses the effectiveness of additional counseling. - The indentification of a hereditary breast or colon cancer risk has not only implications for the counselee, but also for his or her relatives. Relatives may need to be informed about their possible risk. Based on this risk information, they can make an informed decision about whether or not to pursue genetic counseling, test and/or preventive breast or colon screening. Genetic counselors therefore encourage counselees to discuss hereditary cancer risks with their relatives. However, fewer relatives present to genetic services for care than would be expected. The limited uptake of genetic and surveillance services raises the question whether and how at risk relatives are informed by the counselee. Literature suggests that counselees may encouter barriers in family disclosure that result from: 1) lack of knowledge (e.g. not knowing who is at risk), 2) lack of motivation to inform (e.g. wanting to protect relatives for negative emotions) and 3) lack of self-efficacy (e.g. not being able to inform). We aim to develop and evaluate an intervention focused at supporting counselees in disclosing hereditary cancer risks to their relatives.

specialisation

Medical Psychology

ID: 110057